Wednesday, October 17, 2012

Waiting for a miracle ..

When I began this Blog it was to promote a book I wrote two (2) years ago. But life kept getting in the way, I tried very hard to understand why? Well, my youngest contacted an extremely rare blood infection, there have been on 10 reported cases according to UCLA. So I got my answer, I was needed as a Mother even though he had grown and left home. During this struggle his wife and partner of ten (10) years she left him and took their eleven (11) year old son. He has almost died 4 times now and has learned to live in the hospital for all this time. So now the focus of my Blog has changed from my book to my son's survival, nothing else matters at this time. I hope you will follow us as we journey down this path. I will begin the Blog from now and I hope you find it interesting and give more education for on this infection. It is out there in our air, however they are saying now that the other nine (9) patients had received tattoos. It still astonishes me that there is such things in our air we breath. So may I wish you all a marvelous day and I look forward to hearing from all of as we travel along.

Friday, July 27, 2012

A Aha Moment

All of a sudden today I had a "Aha" moment. When I began this Blog my life was less stressful, however during this past one and a half years my youngest son has been fighting for his life. The most amazing thing is the doctors do not know where both infections came from? When I close my eyes the feelings just flood my body. My stomach gets Butterflies, my heart changes beats and my minds runs rampant with too many thoughts to chase.

He was diagnosed with a Staph MRSA, unknown how it entered. He fought Staph the first of the year and almost died two times. Then at discharge when I picked him up he was so weak and frail he hardly made the trip home (four hours). He was out of the hospital one day before being readmitted. Within five days of his readmission he was on deaths door. Seven days later he was getting 3 transfusion for his blood count was dangerously low. His T cell count was ten, yes I said ten! And they still had no diagnosis.

I have decided to step away from the original theme of my Blog and try to use this time to work through a life  altering time for me and the yet unknown future for my son. As a writer I see things differently at times then the normal person. I feel everything more intently and more sensitively then some. I am a spiritual being as my son was and since all of this; has returned to his own spiritual path. I feel the things I have been through and still must deal with for he is far from healthy, but he/we are determined to make the finish line.

I am brimming with emotions and not yet released stress. I have questions, curiosities and a need for explanations if not answers. The most perplexing oddity is his second diagnosed infection is in the TB  family, but not TB. It affects his immune system, his vital organs, his lungs, and his bones. Now keep in mind while struggling to survive with this added and new infection, the Staph had invaded his heart and heart valve. He was scheduled for "Open heart" surgery at 29 years of age! He has lost 30 pounds on his 5'11" frame. He has gone from a strapping well nourished handsome young man, to a thin and frail older looking young man who has lost a lot of his  beautiful black hair due to "massive"doses of at times 4-5 IV antibiotics, which also caused other issues like vital organ shutdown to discoloring his beautiful smile due to the medications.

As a divorced Mother it has been hard on me. I have always been a strong person but this task has stretched my inner strengths to endure places I never knew existed. So please allow me to share this part of my life before picking up on my blog as I had planned to pen for you. I see somehow they have began to intertwine together. So for now I will breathe and clear my mind for now. Tomorrow is another day.

Tuesday, July 24, 2012

Bonsoir my beautiful friends .. Please excuse my long absence .. My youngest son has been fighting a life threatening infection that he inhaled through the air .. Something I could not fathom happening to him to us .. But I have put my writing on hold until he is stronger .. He has had to go through open heart surgery just to survive .. It has been a very, very hard past year and a half for us all, especially him .. I will return soon with the remainder of many words to share with all of you .. Once again please indulge me during this time and stay connected through my Twitter . Merci beau coupe, Alexi

Monday, April 16, 2012

A real person ..

A friend of the male persuasion suggested I write as if I was speaking to a real person, well I thought I was .. Could it be that when I write from my heart and the depth of my soul no one understands or hears me? Maybe we live in such a world that people do not always speak truthfully or honestly about their feelings .. Well I do and it is whom I am ... Life can be jaded if we let it ... I try not to ... I started this Blog to introduce my book about a journey of two people one lonely and one I suppose in the end; just out to get what they could. A lot like real life as I have seen but there are some twist along the way ... So settle in and journey with me and lets see what unfolds .. Sweet dreams!

Wednesday, April 11, 2012

Bonjour my Dahlings .. I apologize for my absence it has been a stressful year .. however my love for writing exceeds my loss of love in life .. I do hope life has been good to you and that your hearts are grateful .. For me I vow to return to my daily Blog and I hope some of you will return to me, for you are loved by me .. I wish you each a marvelous week .. see you soon .. and yes, a lot of stories of my love .. or should I say former love ..